Natchitoches’ First United Methodist Church was the scene of the ninth of a series of benefit concerts held to raise funds for an eminently worthy cause, helping one of our own who is facing a grave illness. People from every corner of our community gathered once again to enjoy a superb Gospel concert by The Amazing Rhythm Disciples Sunday October 12. The tireless group played a two-hour concert delighting the audience with their signature blend of old favorites and Gospel songs with a novel twist.
People from all over Natchitoches and Sabine parishes have rallied to the side of Lydia, a local three-year-old girl diagnosed with San Filippo Syndrome, a rare genetic disorder that attacks the central nervous system and is terminal. There is presently no cure, but Lydia’s parents were able to report some wonderful news in that the FDA has recently approved an experimental treatment and that she may qualify for.
Lydia’s family is praying for a miracle to save their child and is asking for our help. They are raising money for the Cure San Filippo Foundation in order to fund clinical trials that could save their daughter. It may be an uphill battle, but they remain undeterred.
One great aspect of life in a small town is that when trouble comes, so do neighbors willing to help.
The community’s response continues to be inspirational. Today’s concert raised over $4,000.00 and was one of a series of fundraisers held over the past year that have raised over $450,000. This past year has seen hundreds of people from every race and station in life come together in order to help a three-year-old child have a chance to live a normal life. It is an inspiring example of our nation at its best!
